~"“Irony is the jesting behind hidden gravity”~"
When I was seven years old,
Do you ever have days where you say to yourself "What the hell was I thinking?" Yeah well, I had many of those this year- mostly on alternating Wednesday nights between the hours of 5:30 and 7:00 p.m. Do you have any idea of what it is like to walk into a room where seven little girls are eagerly waiting for you-all shiny eyed- full of hope and expectation? Where they actually expect you not only to have an activity planned-but a cool and fun activity! A cool and fun activity that will stretch their imaginations, make them think, get them excited about all that they can do in the world. It's terrifying.
Let me start by saying that these are great kids. I really enjoy them all. This was the reason I
It has been a year of ironies for me. If any of you read last weeks post-you know that we had an IEP meeting today. On Wednesday, I was told by someone with some authority "I don't really have cause to believe she has any kind of autism." Inadvertently leading us to believe that she was going to lose her IEP. Which is something you just don't want to hear two days before her meeting-especially when you see how much she has and continues to- struggle. It's funny..When I look back three years or so-to when she was first diagnosed..I said those very same words. We had already gone through the diagnosis of two (very different from each other) boys. I had thought I had seen it all-knew it all. In fact, I was SO SURE that I was right-that it took the input of three speech therapists, three occupational therapists, two educational specialists and a neurologist to finally accept what I wasn't open to. As my dad used to say "A kick in the ass is a kick forward..I guess I got nine. I am not going to go into the details of how I felt about this-or my idea that I had somehow let my daughter down. I will just say that-we accepted(finally) the diagnosis-and have done our best to get her everything that she needs. As a parent,(and especially this week) I have to say this. We do not WANT our daughter to be autistic, have autism, be on the spectrum or whatever you want to call it. Like it or not-SHE IS. It is not our purpose, our dream or our mission in life to prove this to anyone. We are not so enamored with this neurological difference that we consider it a "must have" for any of our kids. It is what it is. Whether or not one chooses to accept that is on them. Not our daughter. I just needed to make that clear to anyone who.. you know...may be thinking that way. Regardless, we had her meeting and we got her the services that she needs for the next three years. We are relieved. Especially as she is getting older and academics and socialization will become more entwined. Early intervention is EVERYTHING. I am so very thankful for everyone who rallied behind her today. My girl is going to get what she needs. Which is the whole point-isn't it?
I had intended this post to be a light hearted piece about my adventures in Girl Scouts this year..I didn't mean for it to get so serious at the end. But there you go. Ironic isn't it? Only two more scout meetings to go...