Showing posts with label autism kids family things said that make mothers crazy shiny nipples worry anxiety humor great kids. Show all posts
Showing posts with label autism kids family things said that make mothers crazy shiny nipples worry anxiety humor great kids. Show all posts

Saturday, May 21, 2011

The sound of one boy eeeing...

  ~"Worry...worry worry worry worry... worry just will not seem to leave my mind alone"~ Ray Lamontagne


 My kids are all pretty close in age(roughly 2 years between each of them)-so when one of them has a friend over, they all consider them their friend as well.  With the exception of Sam-who, is starting to separate from the pack.  He will be thirteen this year..and considers himself quite above it all mature.  A couple of weeks ago, one of the neighborhood kids was over at our house talking to Sam. This boy is one of  a pair of brothers who come over to play from time to time.  (This particular boy is Sam's age his brother is closer to Lily's age-7)  All of the kids usually ride their bikes up and down the driveway..or play tag and sometimes just run around in circles screaming...regular kid stuff.  I hardly ever have to intervene..It is only when someone is being purposely left out..or teased to the point of frustration that I'll step in and kick some butt set them straight.

  Now having known my children all of their lives, I'm pretty used to them. So Oscar's stimming and eeeeing are a regular part of our lives. The same goes for Sam's very sensitive nature, Lily's tenacity and Zoe's tendency to go mute in stressful situations. I don't really think about these things (unless they are being discussed-i.e. IEP meetings, school , therapy etc.) because they are just a part of what makes my kids...well, my kids.  So, I was pretty surprised when one of those boys said to Sam.."Hey...does Oscar have autism?" "Yes, yes he does"..."Oh."  "So do I."  "You do?.."Yes, yes I do."  "But you don't look like it."  "Well...I draw a lot." "Oh..(and after a moment)...so, when I get home I'm gonna call my girlfriend....do you have a girlfriend?"  "Yes.." (12 years old and already posturing!) and that was the end of it.   If only it were that simple for the rest of the world.

  We had Oscar's annual IEP meeting last week.  Next year is his last year of elementary school so we have spent some time talking about preparing for middle school. One thing was said (that keeps reverberating in my brain) that in a way bothers me - "We have to let the teachers know that Oscar is not like Sam."..*sigh* Logically, I know what was meant by that. My boy struggles with pragmatic language . He has extreme stress and anxiety-which comes out in the form of stimming and laughing. Logically, I get it-I do....sort of.  But on the other hand...on the other hand It feels like a dismissal....as if they were really saying "You had better warn them not to expect too much."  It left me feeling kind of empty...and a little sad. . Yes, Oscar does face more challenges than his brother or sisters.  He does not always have an easy time of it.  The boy frets and is anxious..he WORRIES.....And yet, at the same time he has such humor..and a certain confidence in himself that none of my other kids have. "Mama?" "Yeah bud?"  "Do you want to know my favorite body part?" "Your favorite body part?" "Yeah...it's my nipples! hahahahaha...I'm gonna make mine shine!" and as he grabs his chest and growls.."shiny shiny nipples..hahahahahaha! Do I make you laugh Mama?"  "You do"  "Because I'm funny!"  "You are." "hahahahaha and I have shiny nipples!" "well o.k.!."   Of course he's not like Sam. He's like himself  and that's alright.

About a week after Sam had that talk with his friend, both he and his brother came over-and everyone went out to play. Everyone.  There was no treating anyone differently..no excluding..or weirdness.  It was as it always had been..a bunch of kids playing and yelling..and occasionally one eeeing.