Showing posts with label autism acceptance humor. Show all posts
Showing posts with label autism acceptance humor. Show all posts

Sunday, June 20, 2010

Pomp and circumstances beyond our control...

"Gasping at glimpses of gentle true spirit; he runs wishing he could fly only to trip at the sound of goodbye"
~Stephen Stills~








 I have a profile page on Facebook.  I use the site primarily as a way to keep informed of all the things happening in the world 'o autism.  It has connected me to people, groups and organizations I might never have known about.  Through it I have made some wonderful friends and connections.  Well, Facebook has this little section on the right hand side where it suggests people you might like to "friend"  Usually, they are friends of friends.  In other words, people who share the same interests that you do.  If I know of this person, or they are connected to many of my friends, I will take Facebook up on their suggestion. Today however, Facebook crossed the line..made a suggestion that had me shaking my head in disbelief..made me pose the question  "Just who does Facebook think I am?" ...and more importantly "Why?"  Yes, today Facebook recommended that I friend none other than "Regis Philbin"  What the hell???  What Could I possibly have in common with him??  He's a creepy old guy that shouts too much!  What in the world have I done or posted that would make Facebook think I should connect with Regis??? Do they think I'm incontinent?  I'm 46!  Not old and complacent!  I have full use of my limbs! (being immobile is only way you would ever catch me watching his show-seeing that I would be unable to move and couldn't reach the remote to change the channel)  Until today,(and the Regis suggestion) I hadn't ever really thought about my age. I am who I am...sigh...if only it were that easy for Sammy.

  It was a big week for Sammy. My gentle boy, my shining light, the kid who we were once told not to have too many expectations for, that same boy we were told "wouldn't" or "couldn't"-THAT BOY, graduated from elementary school this week...and I am breathless. Also a little worn out..

  It was a long ceremony that could have been a whole lot shorter.  First they had to give awards to the kids with the best immune systems. Yes, there is an award for the kids who did not miss one day of school.  Maybe it is just me-but really..do you want me sending my kid in when he has the flu?  Is it his fault if he happens to get sick? Is not getting sick really worthy of an award?  Then there were awards for participating in chorus (most kids did).  So we had to sit while fifty or so kids went up to receive that award..then there were the "participating in band" awards. Remember the trombone?  There seemed to be awards for everything...and it felt like five hundred million kids each got them..and we had to patiently clap for every single one of them. But the most ridiculous (in my opinion) award was for meeting the equivalent in standardized tests.  We all know those tests-every state has them.  So in the first place, giving awards for something they are supposed to have done  is.well...kind of redundant. In the second place MOST of these kids did NOT meet the standards in BOTH reading and math.(4 met neither)  Only handful exceeded in both subjects. Yet all but those four kids got an award. What does that say?  Mediocrity is o.k.? Excelling is no big deal-because everyone is going to be recognized?  Why have standards if you don't hold them up?

 It was a long ceremony.  I started to feel like we were at that part of the Academy awards that doesn't get televised-because no one but the recipient cares about the award.  Don't get me wrong!  There were nice parts as well. The kids got to hand out flowers to the people who meant the most to them at school.  Sammy gave his to his first grade teacher-who absolutely rocks!  She was the first teacher who saw his potential and accepted him for who he is.  She helped lay down the foundation that led to his love of learning.  We adore her-and Sammy-he loves her dearly. But to me, the greatest part of the ceremony (besides the end)..was when their  were four special awards given-Writing, Math, History, and Science.  These were given to the kids who showed the most interest-the most passion-and because of that-the most promise for these things.  My Sammy-(remember the boy we were told not to expect much from?)  My Sammy won the science award. Again I was breathless..and amazed and in awe..and utterly overwhelmed with love for my boy.  Because he can-because he does-and because he will.  The ceremony ended with the fourth graders playing the same four notes over and over on their recorders (music teacher is retiring)  as each of the fifth graders names were called and they received their certificate of graduation. To say that I was overwhelmed would be an understatement  as I watched Sammy receive his. My lovely boy, my gentle soul..is taking flight.. 

  It was a big week for him, and the beginning of a lot of changes.  He's having such a tough time with all of it.  There is a part of him that longs to grow up-and a part that clings desperately to childhood. He is standing in that hard place between being a boy and becoming a young man-and he doesn't care for it.  Not one bit.  Today we were talking about our towns summer recreation program-and he got very upset with me..
"Hey buddy...maybe in a few years instead of GOING to summer rec, you can be one of the counselors." .."I don't WANT to be a counselor!  I just want to go!"  "But Sammy-there will come a time when you are too old to be one of the kids..." He didn't like that idea at all...he got all teary..I tried to explain.."Remember when you watched "The Wiggles" all the time..(24/7) and I told you that there would come a time when you didn't like them anymore(I was desperate)?"  "yeah..."  "Well you said that you would NEVER stop watching "The Wiggles"!!"...well, do you watch them now? " "No.."  "See..?.you stopped when you were ready to..growing up just kind of happens..without you even thinking about it..o.k.?  "O.K....but I still don't want to be a counselor!"  "Yeah..well I don't want to be friends with Regis Philbin!"  "Who?"..."Never mind.."

Tuesday, January 26, 2010

When life hands you a vortex...

"You be the captain, and I'll be no one.
And you can carry me away if you want to."
Kasey Chambers




I don't know how it happens...it is an odd phenomenon. I know that I am not alone in this..there are others like me..Others struggling with this same problem day in and day out..I won't be silent any longer! I must tell the truth. There seems to be some sort of vortex in our house..an invisible hole, one that sucks away socks and gloves..not pairs..just one of each pair. I don't know how it happens. I watch very carefully. I am like a cat with a mouse hole. And yet, I now own fifty unmatched socks and twenty five right hands of gloves. I'm starting to wonder, is there an invisible one footed left handed thief among us?

Oh sure, I've heard similar stories. People making jokes about recovering missing socks..gloves..you name it. They are just covering up their fear. Fear of the unknown. You see, I have had these things disappear before my very eyes. It seems to occur with Sammy the most. I will be talking to him..he will have both gloves on..and then, all of a sudden..one will just be gone. Nowhere to be found. He hasn't moved, hasn't left the room-and yet, his left glove will be missing and we won't be able to find it-anywhere! Poof! Into the vortex. The really scary thing is, we won't ever find that glove again. It is starting to freak me out a little.



My kids (well, mostly Sammy) misplace things all the time.Hats, books...trombones.. I am a regular visitor to the lost and found box at school. This is why EVERYTHING they own is marked with their names in indelible ink. That way, they always know if something is theirs or not. This is most important to Oscar. He is fastidious about his things. He always knows where his shoes are, his hat, his gloves-everything. It is one of the constants he relies on to get through his day. Which is why I was totally blown away by what happened last week.



It was Friday, I was eagerly waiting for the bus. I thought that the kids would be excited as it was the weekend AND Oscars birthday was on Sunday. Birthdays are a big occasion at our house. Really, how often does anyone get to celebrate just having been born? (Personally, I celebrate having survived labor) On a cold winters day, nine years ago, after almost being born in a car, Oscar came barreling into the world at a whopping 9 lbs. 3 oz. (his sainted mother was too far along for an epidural to have worked) Did I mention celebrating the fact that I survived labor? Either way, I expected Oscar to be excited when he got off of the bus. Instead, I was met with a very upset and crying boy. Oscar, buddy, whats wrong?" "My hat...my hat..my gloves.."
"What about them?...why are you crying?" "They're lost..Sammy lost them..lost..they are lost"
"What do you mean-Sammy lost them..on the bus?" "No!! at the museum..Sammy lost them at the museum..my hat and gloves.." "O.K..we'll find them..come on, calm yourself.." "NOOOOO!!! I want my hat and gloves..I won't have my birthday..my birthday is cancelled..no birthday for Oscar!" "Come on Oscar, we'll find them...it's just a hat and gloves...we'll figure it out..it's your birthday Sunday..cake and presents!! It will be o.k." "NO! No birthday! no cake! no presents!" and up the stairs he went..to go yell in his room for a bit. Nothing I could do but let him. Trust him to get through this-even though my instincts screamed for me to run after him and fix it. sigh..."Sammy? What happened..how did you lose Oscars hat and gloves?" "I left them at the museum" (Sammy had had a field trip that day) "How could you leave Oscars hat and gloves at the museum? When you left home this morning, you were wearing your own!" "I know!..I thought I had lost mine, but when I got on the bus to go home, Oscar had them and HIS were missing!" Do you understand why I am freaked out now? Scared of this hat, glove and sock vortex that is overshadowing the lives of my family?

An hour or so later, a very calm Oscar came downstairs to talk to me. "Mama? It's o.k. that Sammy lost my hat and gloves. It was an accident" "It was bud, he didn't mean it. Do you feel better now?" "Yes." "I'm glad..a hat and gloves are just things. No need to get so upset about them. If Sammy can't find them...we'll get you some new ones...is that o.k.?" "O.K. Mama...uhhh..Mama? We can still have cake and presents right?" "Oh Oscar...come here and let me hug you..of course we'll celebrate your birthday! How could we not? It is one of the best days ever! And off he went. and off he goes..Three years ago, losing anything would have been cause for a major freak out. I look at my now nine year old in amazement. My curly headed flying boy...How much he has grown, how wonderful he is. Kids grow and develop at their own rate. The important thing is to simply let them.

I have however, decided to wage a battle against the sock, hat and glove vortex. To try and get back some of those things I have lost. So, if there is anyone looking for fifty or so socks or right handed gloves, please leave me a message. Maybe we can get together. I look forward to hearing from you.